Friday 11 March 2016


March 11/16

 

Sorry for this long gap in communications, but nothing very special has been going on.  That in itself is probably the best sort of news.  In the main I feel well, that is, none of my parts are giving me much of a problem.  My only real difficulty has been, in spite of taking pills on time, several evenings over the past few weeks I have felt very restless internally.  It is hard to describe; I’m back shuffling, I don’t want to sit still, there is nothing I want to do and my insides seem to vibrate.  I know that’s not what is happening, but it feels that way.  And, I feel depressed and exhausted.  In doing a bit of research and talking to my pharmacist there is some suggestion that it is extra protein reacting with my Levocarbidopa drugs and interrupting or delaying their usefulness.  I am going to test it by having a porridge day.  I have porridge every morning and it has never given me any problems.  My test will be to eat it (with fruit if we have it) for all three meals and hopefully have no negative feelings.  I will report back.

 

My best days are when both my mind and body are busy.  There are a few activities that fill the “busy” category.  As I have mentioned in the past, I work-out at our local community centre three times a week.  The building was an old school and had some unused long book shelves in the main hall.  The management agreed and we now have a book exchange which gives me a small amount of work putting donated books in some order on the shelves.  We have had hundreds of donations.  There are no records kept and the motto is:  “Bring one, take one, read one” – in any order.  There are people using the building from day-care to Seniors, and it seems to be used by many members.

 

Another interest is writing, and I belong to a small group which meets once a month.  We draw a topic each month and produce a short story for the next gathering.  The “topic” word can be interpreted as you wish.  One of the earliest stories on this blog, “Dancing with Death” (a Parkinson’s story) was written last August.

 

Reading is also a big interest, although my speed has slowed.  Because of Parkinson’s and my other ailments I have been doing some reading topics concerning the end of life.  My most recent in this genre is “Being Mortal” by Atul Gawande, a doctor.  I recommend it.  My theory is, that the more you know about a topic, the easier it will be to deal with.  As an offshoot of all of this I have pre-paid for my eventual cremation, and as an offshoot of that I am making my own cremation “urn” out of mahogany.  All this took a bit of research and gave me another project to work on.  I’m not rushing this last part.

 

Some time ago I said that we had purchased a pill timer which also had compartments for pills.  If I remember correctly, I believe I also said that it had died (better words – “quit working”).  We ordered a different one from Amazon in the same price range – under $30.00.  It is working well and I even understand how to set it for my pill times.  The first one was beyond my comprehension.

 

There, did that make up for all the days I missed – or did anyone notice?

1 comment:

  1. My husband was diagnosed with early onset Parkinson's disease .his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure from ULTIMATE LIFE CLINIC, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimate life clinic they walked us through the proper steps,their website is www.ultimatelifeclinic.com

    ReplyDelete